I wrote the everyday parts down. Meet Pivot.


Some of the hardest parts of caregiving happen in the middle of an ordinary day.

Breakfast. A conversation about money. A familiar routine that suddenly needs more help.

I wrote the everyday parts down.

Meet Pivot: A Caregiver’s Path With Frontotemporal Dementia.

It comes from life with my husband, Rob, and behavioral variant frontotemporal dementia, or bvFTD. He shares his perspective too. There is love in these pages, frustration, and the kind of humor that turns up when the day has already used your last nerve.

The seven chapters begin with something we lived through. Each brings together a story, a plain-language explanation, and reflections on what helped us, what I stopped expecting, and when safety or professional help mattered.

If you have followed Rob’s Corner, you already know that our stories include the messy parts. They belong in this book too.

Start with a free chapter.

“Turn Off the Stove” shares how a missed step at breakfast and a frightening morning helped us build more structure into daily life. You can read it before deciding whether Pivot fits your family.

​Read the free sample and explore Pivot →​

From October 7–13, use PIVOTTHANKYOU at checkout for $2 off the digital PDF bundle: $7.99 instead of $9.99.

The bundle includes the book and two companion checklists: the Dementia Observation Checklist and the Neurological Patient ER Visit Checklist. Both checklists are also available separately for free. This website edition is a digital download; no physical book is shipped.

The code applies to Pivot only, once per customer, and cannot combine with other discounts. It expires Tuesday, October 13 at 11:59 p.m. Pacific time.

If you are living with bvFTD in your family, I hope you find a moment you recognize and words for something you have struggled to explain.

Thank you for being here while we build this.

Heather

Robbins Nest Alliance

One family’s experience and educational information. Not a diagnostic tool or a substitute for individualized medical advice.

Heather at Robbins Nest Alliance

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Read more from Heather at Robbins Nest Alliance
eather and Rob smiling together on a windy ship deck, with the ocean behind them.

Heather’s Corner Rob booked a cruise while I was away. Usually, when an unexpected purchase arrives, I investigate the return policy. This one came with a departure date. We had never taken a vacation together like this. So after some debate, we kept it. Then I began the very relaxing process of preparing to relax. Doctor’s appointments needed moving. Our schedule needed clearing. The nonprofit needed enough work finished ahead of time to keep going without me answering emails from the ocean....

Rob's Corner: The Quiet Got Me I love war movies and history in general. Heather doesn't, not really, she tolerates them, tunes out half the dialogue, and has heard the same films enough times in the background to know them by heart anyway. So when I asked her to actually sit and watch a new one with me, that was already a good night. We did it right. Couch fluffed, snacks out, surround sound on, lights off. Fifteen minutes in, I started narrating the equipment on screen, the names of the...

Rob's Corner: The Carboy Incident Years ago I planted grapevines in the backyard. Syrah, Chardonnay, Zinfandel, a few table grapes for good measure. I have no memory of what I was thinking at the time, but they've been growing ever since, and this year I finally decided we were making wine. Braden and Audrey got me winemaking kits for Christmas and my birthday, which I took as a mandate. So I went out and picked, basket after basket, sorted by variety, and got everything ready for press day....